Navigating Infant Loss: Julie & Carson’s Story of Love, Loss & Advocacy for Baby Ellie
59m | Feb 23, 2025In this emotional episode of Healing After Infant Loss, I sit down with Julie and Carson as they share the heart-wrenching story of their baby girl, Ellie. Born at 35 weeks, Ellie spent 16 days in the NICU before being diagnosed with a rare genetic condition, Progeria. Despite their unimaginable loss, Julie and Carson found strength in advocating for Ellie’s care, cherishing every moment, and now sharing their story to help others.
🔗 Read the Blog Post: https://healingafterinfantloss.com/un...
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🔗 Read Julie & Carson's story: https://healingafterinfantloss.com/ju...
In this episode, we discuss:
• Their pregnancy journey and NICU experience.
• Receiving a terminal diagnosis and preparing for loss.
• Advocating for Ellie’s medical care and comfort.
• Coping with grief and finding ways to honour Ellie’s memory.
Julie & Carson's Instagram Page: 
/ notsonormalparents
Links:
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With love and compassion,
Rosie x
